From Misunderstanding to a Clearer Path: Why FASD-Informed Care Matters [VIDEO]
What happens when someone spends years trying as hard or maybe even harder than everyone else—yet still feels like they're failing?
In this powerful and deeply personal presentation, Shannon Butt shares her lived experience of navigating life with an undiagnosed brain-based disability and the profound impact that understanding Fetal Alcohol Spectrum Disorder (FASD) had on her journey.
For years, Shannon sought help but never seemed to find answers that fit. Like many individuals affected by prenatal alcohol or substance exposure, she carried not only the challenges of daily life but also the weight of misunderstanding, misdiagnosis, and self-blame.
Everything changed when she encountered Angela Geddes' book, A Complicated and Beautiful Brain. For the first time, her experiences made sense, opening the door to self-compassion, meaningful support, and a future she once believed was out of reach.
Today, Shannon mentors young adults with FASD and mental health challenges, using her lived experience to help others find clarity, connection, and hope.
Shannon's story is a powerful reminder that when people are understood and supported in ways that fit how their brains work, lives can change. Her message offers hope to individuals and families while inspiring professionals and community helpers to become better equipped to recognize, identify, and support those affected by prenatal alcohol and substance exposure.Watch as she shares her story, the hidden realities of living with FASD, and why informed, compassionate support can change lives.
Follow Shannon on Instagram: @shannonleebutt